Showing posts with label attachment. Show all posts
Showing posts with label attachment. Show all posts

Saturday, July 12, 2014

Eight Weeks Home, Christy Update!



Taking a nap at the park just last week!

I am shocked and surprised at how different her second month home has been from her first month home. Christy's first month home was mostly spent at home, where as the past 4 weeks have been insanely busy!  I am also shocked at how badly I did at taking photos of Christy (or anyone around here for that matter!).  I will have to do better!

Christy had an appointment with the ENT (Ear, Nose and Throat) specialist.  He said that someday she'll probably need her tonsils and adenoids removed since she does snore often, but that she felt that she was on the small side and thought waiting was the better choice, but also said that we might consider getting a second opinion at Children's Hospital in Seattle.  We talked it over, and due to her sinus congestion waking her more and more frequently as night, we feel that she needs to see the ENT at Children's.  This referal has been made, but I have not gotten an appointment yet.  After seeing the ENT her pediatrician wants her to also have a sleep study done.

Christy giving one of her goofy silly looks - this was taken yesterday
A couple days later Christy got to go with us to a local park to play with friends while the big people played volleybell.  Christy did so very well there, but did NOT like the swing (you know the one that is like a bucket with holes).  She was happy to hang out in her stroller or play on the grass.  She did manage to get over into the sand, but this mean mommy took her out before she could eat any!

The next week was very busy for me (Esther had a pre-surgery appt at Seattle Children's) and our family (we had a stomach illness run through about half of the family, but just one or two people at a time).  Christy had her first Physical Therapy evaluation that week too.  We found out at that appointment that it would be best to wait to get braces for her legs (to limit the range of motion as her knee are double jointed) until after she has learned to crawl.  As long as she is not weight bearing, she will not be damaging her knees.  Once she has learned to crawl, then we will be getting her braces to wear when she is practicing/learning to walk.  We have some exercises to do with her now to strengthen her legs and arms to prepare for crawling.

First time in the pool....
We had a busy Fourth of July weekend, with relative from out of state visiting in the area.  Christy got to go the beach for the first time, but it was very windy and she didn't like it at all.  She just wanted to be held.  Then we went to a family reunion (Daryl's family) at another park and she did much better there, but like best to be in her stroller.  

Last Tuesday we went to another park (Esther's Physical Therapist has recommended that we take her to parks frequently to help her built coordination and strength - and it's working!).  Christy was tired when we arrived (it was lunch time) so she took a nap in her stroller - first time she's ever done that!.  Someday I hope that she will begin to be able to explore parks, but right now it's really hard since she is limited to scooting around on her bum, and she puts everything in her mouth (a really bad combination since she has a very poor coughing ability so choking is a very real hazard for her - even here at home).

She Loves It!
Yesterday Christy was evaluated by our favorite speech therapists, Elaina.  We were greeted with excited hugs as we haven't seen her in a long time (Esther and Dayton both have seen her in the past).  Elaina confirmed that Christy does have some eating coordination issues and is also concerned with me that she is not gaining weight very well yet.  She has given me some things to do with Christy during meals to increase her awareness of her mouth, work towards self feeding and learn to drink thickened water from a cup.  I am also teaching her to sign "eat" and will work on saying "eat" and "water" to her when I am feeding her.  Elaina really wants to see her regularly but has a long waiting list.  They are going to try to get her on the schedule soon.

And Esther Loved having her in the pool!
Yesterday Christy experienced our pool for the first time and she loved it!  She loves taking a bath, but I wasn't sure if she'd like the cooler water.  But we've had an unusually warm summer so the pool isn't too bad.  She will definitely be following in Esther's foot steps and become a fish.  Carese, on the other hand wants nothing to o with the pool!

Christy has been staying at home more recently, but that is going to change as she has lots of appointments in the next few weeks - her dental evaluation at Children's. Physical Therapy once a week, plus our annual week long camping trip!  Plus we will making more appointments for her dental work and seeing the ENT.  

My baby girls, in PJs but not ready to go to bed quite yet!
Overall, Christy has been exceptionally healthy and has adjusted very well to our home and life.  I have found that she enjoys shopping when she is in her stroller.  Generally speaking, away from home her safe place is her stroller.  At home she loves to explore and even enjoys spending time in the yard and swinging on the swing set (in HER swing of course).  She gets lots of attention and enjoys play.  Hearing her laugh is just THE BEST!

 She also allows me to hold her hands together when I pray with her at betime - before she would resist and get mad at me!  The funniest thing is that she LOVEs to get dressed and undressed.  She giggles and giggles.  I will have to videotape this somehow.  She is getting very fast at scooting up to someone and raising her arm(s) to let them know she wants to get picked up.  She will even chase you down if you are avoiding her (for fun, of course).

All tucked in and ready for bed!
She is a very content little girl.  She rarely cries.  She usually has more of an angry cry when she gets hurt or is in pain.  It is a strange cry - almost animalistic.  Its almost like a panic kind of cry.  It is very sad to hear and really hard since we quite often do not know the cause - she just can't tell us.  Even when we know the cause (like if we see her fall over and bump her head), it's hard because it's almost as if she doesn't understand how to receive comfort.  But she is improving in this area somewhat, and I'm sure with time she will come to understand and receive comfort from us.



 Christy and Carese are nearly identical in size.  Six weeks ago we found out that they were less than 1/4 in different in height and less than 3 oz different in weight.  Christy really has not grown noticeable yet so they are still like twins.  They wear the same size clothes (you can notice that Carese is wearing the same PJS that Christy is wearing in one other photo).  For a while, all the winter clothes were put on Christy, and the summer clothes on Carese.  But as the weather has warmed up, I am dressing Christy in lighter clothes so they are being dressed more similarly now as a general rule.

And now for two videos!  The first one was of Esther and Chrisy playing together, really for the first time.  This has been the biggest change in Christy's life in the past month.  Esther no long ignores her and actually loves to play with her.  At random times we will find Esther sitting down next to Christy and just giving her hugs - it is so sweet!

The second video is ground breaking stuff!  Christy is slowly but surely gaining more use of her right leg/foot and arm/hand!  In the last video, you will see her use her right hand/arm to shake a rattle!  We did have to put the rattle in her hand, but she kept it and moved it enough to create sound, and she knew she was doing it!  This is miraculous!






Thursday, June 19, 2014

Christy's First Month Home!

Two Feet on US soil - a new US citizen!
Oh my, time flies!  I can not believe that as of this week, Christ has been in our home for a month!  Her first day in our home was May 18.  She has done so very very well in adjusting to our home!  She even acclimated to our time zone within days - faster than I did, that is for sure!

 We have been very busy settling in, finding a new routine that works for now, and getting her the medical diagnosis that we felt were important - here's a list of appointments she's had and what we found out from them:

Carese - the binky caretaker
May 20 - Pediatrician - basically got her height weight, updated our Dr with her new medical information and got her file started and a general look/see for her doctor and her.

May 22 - University of Washington Adoption Medical Clinic (3 hour drive each way!) - Dr Davies got her weight height and looked over both Christy and her latest medical documents and got referrals in place for things like cardiology, neurology, speech and physical therapy evaluations being top priority, Ear/Nose/Throat  evaluation, eye sight and hearing are all on the list too, only not critical.   She also had a myriad of blood work drawn and tested as well as stool cultures done.  So far everything has been great, with the one exception of a Vit D deficiency (we are giving her 1000 IU/day now).

She wasn't too sure about grass, but she warmed up to it!
May 27 - Pediatrician - checking Christy for cold symptoms, but mostly discussing the findings from Dr Davies and discussing referrals needed. She also got to watch Christy drink from a tippy cup and put in the feeding referral right away...told me to only feed her foods from a spoon until then (thickening everything to pudding consistency to be on the safe side).
It was hat day, or something!  Carese wanted to do whatever
Christy was doing that day!

Starting the next day, a virus passed through our family - Rachel, Elizabeth and Carese with high fevers, and I got tonsillitis, the worst case that I can remember (it really took me over a week to finally have no pain)!  Esther and Christy did not get sick at all which was totally weird!

Too stinking cute!
June 3 - Seattle Children's Hospital Cardiology/Echocardiogram -   I finally got all the answers - Christy did no only have an ASD correction like her earlier documents had said, but a very complete open heart surgery - they repaired an ASD, a VSD and an AV Canal defect.  They basically reconstructed the middle of her heart.  The echo was not as clear as they would like, but she feels that the surgery was very successful that she will not need any further repair work.  We are to bring her back in one year from now.  That was a very good sign!

Playing at her Neurology
Appointment
June 5 - Neurology - after reviewing her medical files, and observing her clinically, the pediatric neurologist has determined that Christy has brain damage.  This could have happened either when she was born (traumatic, fetal distress induced emergency C-section) or during her open heart surgery.  If it happened at or around the time of birth, then it is called "Cerebral Palsy" but if it happens later in life they refer to it as a "stroke."  Either way, it is a stable diagnosis (that means it is not getting progressively worse) but it is permanent.  At the same time she did agree that it was very promising that we were already seeing her use her right hand and arm more and more since we brought her home, and with therapy and the blessing of a home and many siblings to play with, she has great potential to gain more use of her right side and she believes that she will be able to walk someday too!  So that was great news, but I did shed a few tears as in my heart I had really hoped that it was just some pinched nerve that adjustment/surgery would correct.

All 4 in matching PJs!
June 8 - First time we were able to bring Christy to church!  She did great and we had a wonderful time introducing her to our church family.  She would not make eye contact with strangers and got a little stressed if people wanted to touch her, but she had no panic attacks and we were even able to stay after the service for the potluck!


Favorite toy - her own foot!
Jun 10 - On the 5th, I finally got a good look at Christy's teeth and immediately made an appt to see our pediatric dentist.  On this day my suspicions were confirmed.  Every molar had as least two cavities (one above each root) and she needed work done right away.  She has been referred to Seattle Children's for this and has a consultation scheduled for the middle of July, but she is on a cancellation list, so hopefully we can get her in sooner. So far no abscesses, but I am to keep and eye out for that and brush regularly.  She does allow me to brush her teeth, but I can tell that sometimes it hurts (she winces).

First Sunday going to church - all in
Matching dresses (all of which came
from a consignment store!)
That was the  last appointment so far, but in the next month we have the following:

(I have two appts for a new crown as a tooth broke last summer and last weekend it broke further...)
June 24 - ENT
July 1 - Esther's pre-surgery consultation for her dental general anesthesia procedure
July 3 - Christy - Physical Therapy Evaluation (hoping to get a referral for braces and her knees bend backwards to an alarming degree)
July 11 - Christy - Feeding Therapy Evaluation
July 15 - Christy - Seattle Children's Hospital - dental consultation
July 17 - Esther - Seattle Children's Hospital - dental surgery

Good night mommy!
So we have a busy month ahead.  We still have some things to schedule yet, but they are not urgent (like vision).

Matching PJs that were given as gifts from
Two different people in two different states!
As far as Christy's integration into our family - it has gone so very much better than I even hoped!  She really had no problems with our busy home, except occasionally if played with too long she would get grumpy, but would recover if she got some time by herself.  She loves to scoot all around the house exploring her new environment.  She continues to love reflective surfaces like our kitchen appliances. We have definitely had to do some "baby proofing" in the home, especially since she loves to put things into her mouth - she loves to chew on paper, plastic and other things....but yet she spews out things like Cheerios and Kix - go figure!



Here are some videos that I think you'll enjoy!

Christy at the UW appointment, having a great time waiting.  She LOVES mirrors, can you tell?


This was just two days ago - this is her right hand/arm that has pretty much been useless.  When we visited her last fall, she could only move it occasionally and it was usually to get you to stop messing with it.  This is purposefully using it to experiment with the toy!  This is miraculous!



This last video was taken that same day, only at bedtime.  Esther has pretty much ignored Christy until very recently.  We noticed that she showed jealousy for the first time just last week, and it was when she saw that Reuben was spending time with Christy and Reuben is Esther's favorite person.  Then, on this evening, she was actually playing with Christy on the floor and they were laughing together.  I thought it would stop when I took them to bed, but I was wrong and I was able to take this amazing, sweet video of them playing together!



Friday, June 6, 2014

Five Days with Christy - Appointments and Waiting!

Monday morning was our appointment for Christy's medical exam.  This was done in a Bulgarian medical clinic, and we were taken there by our driver/translator team.  They also had her passport for us!  We went into the clinic and the lab was downstairs.  We were pleasantly surprised to see the other family there (the ones adopting the 7 yo boy).  After a fairly long wait (and listening to that poor boy having his blood drawn) we were ushered in to the room.  

The room looked like a small office/cubical than a lab, although there was an exam table there.  After our entrepreneur presented our documents it was time for them to draw her blood.  I'll be nice and just say that it took three pokes, two different people trying, and quite a mess before they got what they needed and poor Christy was very traumatized by it all. 

Then we headed up a few flights of stairs to the pediatrician's office.  There they listened to her breathing and lungs and looked over her paperwork.  I was surprised when the Dr turned to me and said, in English, that I was taking good care of her - this was said as they were trying to get all her layers unsnapped so the r could listen.  I think she approved or my "bundling" Christy (this ranks as the #1 indicator of a good mom in Bulgaria), but I like to think she was referring to my care in comforting Christy during the blood draw (the Dr did the final, successful blood draw).  We also found out that she weighed just over 26 pounds and was 35 inches - very similar to our 2 yo, Carese.  Long and lean.

When this was completed, we were taken to a mall so I could purchase some shoes for Christy, as all the shoes we brought were way too big.  I did find a pair that would stay on her feet, even though they were too big, and they were cute and well made.

Then we were taken back to the hotel, arriving around lunch time.  Then we all took a nap.  Then we got brave an made our way back out to Jeff's house via the subway on our own.   We not only successfully navigated the subway system, but Daryl was even able to find the way to Jeff's apartment.  It's not easy to find and they were surprised that we were able to do that!  There we enjoyed pizza from the restaurant downstairs and while Daryl played Wii with Elise, I played Settlers of Catan with Jeff and Lisa!  I surprised everyone, including myself, by winning!

Here's  a video showing how Christy reacts to "coming home" after being out and about most of the day.  She would just revel in being able to scoot around in her "safe zone"!


Then we headed home.  When we got off the subway were got to surprise a couple from England who were lost just by speaking English to them!  That was a fun little encounter all by itself!  Then it was time to settle in for the night.  Only it took a long time to get to sleep as I was not feeling well.

Tuesday we pretty much hung out all day in our room - none of us were feeling our best, and we had nothing e had to do so we just didn't do anything but eat and rest.  I did make a quick run to corner grocer with Corinna's sister, Sarah.  It was cloudy and windy, but refreshing.  When I reached my hotel room, it was raining like the sky was falling!  We had gotten back just in time.  Then the lightening and thunder began.  It wasn't as good a storm as I love (like in the mid west where the lightening and thunder are almost continuous), but it did have some great thunder.  Just at bedtime, as we were getting into bed, there was one bolt of lightening that was a simultaneous lightening strike and a crack that had both of us jumping out of our skin!  It was terrifying and so loud!  But within seconds we were laughing so hard as we both we so startled by it...and the thunder shook the hotel and caused car alarms to go off in the street below!

For some reason (sarcasm intended), Christy had trouble going to sleep that night, and Daryl took over around 11 pm, and finally got her to sleep around midnight.  So Wednesday we were very tired.  We ended up staying in our hotel room again all day, only leaving for breakfast and dinner, both of which we ate in the hotel restaurant.  

Here's a video showing Christy in "her zone" of happiness in her high chair in the hotel restaurant!  She LOVES being in a high chair, can you tell?



Thursday was our embassy appointment.  We got picked up early, we went to the medical clinic to pick up Christy's test results (she tested negative for TB, yay!), and then went to the embassy.  We ended up getting there too early and just hung out in the car for about an hour - but I was able to feed Christy her lunch and she got a short nap.  Then we went into the embassy - in order to get through security, I had to eat some of her juice and baby food to prove that it was just that!  Good thing I liked what I brought for her that day!  It took over an hour of waiting for our "interview" and we were just asked a couple of simple questions, and that was it!  We were to leave her passport with them so they could add her VISA to is, and our attorney would bring it to us on Friday!
Christy loves to scoot into tight places - this is the bottom of
the closet - she loves playing with a ball in there after I
had packed for our return trip!

Thursday night Corinna and I walked about a mile to Tony's Pizza to get take out pizza.  While we were ordering there was a flash and a bang and we all just about jumped out of our skins!  Something about the fuse box - it was like a small explosion!  The lights went out too.  Good thing we were ordering wood fired pizza!  We chose to wait outside for out pizza as one guy was messing around in an ancient looking fuse box with a screw driver!  Yikes!  By now, Corinna was convinced that being near me meant that excitement was always just about to happen! Ha!

Friday was packing day, and at dinner we finally got to meet our dear attorney, Toni.  This wonderful woman has a big heart for the orphans of Bulgaria and the families who are adopting them.  I had almost daily phone calls from her and she would be praying for us on each step of the way.  When comparing notes with other adoptive families who used other agencies, Dreams Foundation and Toni far out shown the others in the care they take to keep the families in good care every step of the way.  Thank you Toni, for all you do and I count it a blessing to have worked with you to bring Christy into our family!!!

Christy providentially went to sleep the earliest yet Friday night - and it was a good thing as we had to be up and out of the hotel by 4:15 am!  The incredible trip home will be on my next blog post as there were so many unusual things that we encountered...mostly just getting out of Sofia!









Thursday, May 22, 2014

Road Trip to Christy

We left home early Sunday morning to head to SeaTac.  Just to be safe, we left very early.  It worked great - we were 3 hours early.  But I'm OK with that.  We settled in for the long wait, got some lunch and all went just great.  We even got our third check in luggage checked for free when we explained that we were flying for an international adoption of a child with special needs!

Our first leg was flying into Chicago.  The flight was fine, our layover in Chicago was just enough time to get where we needed to go and get a small break between flights.  We also grabbed dinner as the first flight only served beverages.

Cool light and music show in Chicago!
The second flight, the LONG one (8+ hours) was a rough one.  We were sitting up against the wall for first class and it did not give me enough room for my feet.  We were basically looking at a wall the whole time.  The last 2 hours or so were hard - turbulence and motion sickness.  By the time we got off the flight we were both in really bad shape.  Thankfully we had a 4+ hours layover so I had great hopes of being able to recover before the next flight.  Yes, and no.  It was a lot of time, but although Daryl was doing so much better, when it came time to board, I was still in bad shape.  We had tried ginger pills, dramamine and drank lots of water, but nothing could calm down our stomachs.  Then I remembered that we had Di-Gize (the Young Living Oil blend for intestinal issues).  This was the ONLY thing that gave us any relief.  So when the boarding began, I was mostly better stomach wise, but I just could not face another flight yet.  At this point we had been on the road for 19 hours with little sleep and that did not help in the least.  As we approached the door of the plane, I just could not go in.  So I waited outside the door praying like mad and applying Peace and Calming and Stress Away and Di-Gize oil blends.  I was on the verge of tears, had tingles going up and down my spine and was having trouble breathing properly - yep, a full on panic attack.  With God's help I was finally able to board the plane (yes, I was the last person to board).  I asked the stewardess if she could make a bag of ice for me to put on my neck and explained about how and why I felt so miserable.  She was very compassionate and got me set up with the ice bag to place on my neck (a recommendation from a friend on Facebook).

The last flight was beautiful.  I was still feeling miserable, but the flight did not add to my discomfort.  Gradually I was able to calm down and even get a little sleep with the use of my noise cancelling head phone, eye covers and neck roll.  By the time we landed in Sofia, I was feeling almost normal.  God is so good!

We picked up our luggage after going to immigration, and then met our driver (a hotel staff person) who then brought us to our hotel.  We checked in, went straight down for dinner as the restaurant was going close very soon, ate out dinner and then headed to our room to settle in and prepare for bed (it was around 10 pm there).

We both slept relatively well, and were able to be ready on time for our trip to Ruse.  The Budapest Hotel held our large pieces of luggage and we took only what we'd need for the one night in Ruse and what we'd need for Christy on the drive back for Sofia.

We met our new driver, Marty (our attorney's brother), and his cousin, Dani (she was our interpreter), and got everything in the van and headed out.  The drive there was typical for Bulgaria - insane drivers passing when it was too close, too many slow moving vehicles, horse or mule drawn carts, rough roads and all.  We just sat back and took everything as it came.  We did eat a late lunch on the way, and before dinner time we made it to the hotel.

We all settled in for about a hour, and then met to walk around and go for dinner.  We ate at the Happy Bar and Grill and it was as good as I remembered it!  Then we settled in for the night and got some sleep.  Not much, but some.


Christy's first mama - the one who
taught her to love and prepared
her for her real mommy!
We met our team for breakfast and then headed out for Christy's group home.  In no time, after passing through the now familiar streets, we were pulling up to 'The Pink House'!  We walked into the home and were escorted into a back office where we saw Christy in her high chair!  She immediately got excited and was doing her happy thing!  It seemed as thought she recognized us!  There was a young girl, whom we later found out is called Katerina, next to her that I recognized from our first trip.  There was papers to sign, and lots of talk between Dani and the director, some of which was passed on to us.  I found that Katerina girl spoke English and was able to talk with her about Christy.
The Director - an amazing woman
with a big heart for special
children in her care!

 Watching her interact with Christy I could tell that she loved Christy and that Christy loved her.  While there we were given a backpack of things for Christy - clothes, diapers, wipes, a cup, a spoon, a water bottle, a comb and other items so lovingly packed for her.  This was such a surprise!  We were also given the toy and books that we had left for her, as well as a new photo album with photos of Christy while she was living there.  Best of all there was a little file that I will call"The Story of Christy" - it was photos along with her story told as though Christy was telling it herself!  I'll try to include this in another post later!


Christy's Therapist
Then we were taken upstairs (we had never gone upstairs!), and taken into a large room where we found two tables set with food and drinks and all the workers from the group home - even those who work other shifts!  It was a going away party for Christy!  I was given a small bouquet of flowers.They each wanted to say goodbye to Christy and she got passed around.  She did not like this and was complaining a lot.  There were many familiar faces there.

Eventually it was time to go, but before we left, I was able to leave my email address with the Katerina.   As we walked out all the workers followed us, and Katerina was never far from my side, and from photos I saw later I now know that she was holding Christy's hand - it was so very, very sweet!  I almost felt guilty for taking Christy away from these special people who had taken such good care of our daughter....almost.  But I knew this was God's plan for Christy and they would go on to love another child in her place that so desperately needed it!



As we left the home, one woman spread water on the steps and we were asked to walk through it.  Then on to the car, and settling her into her car seat.  She finally calmed down once in her car seat.  All the workers and the director gathered around the car and waved goodbye.  As we drove away, they also spread water on the road for our car to drive over.

Our drive to Sofia was smooth sailing.  Christy ate the baby food I had brought with no complaints, she traveled amazingly well. We stopped for a late lunch/early dinner and she did well then too.  She even took a nap in the car too.  With Christy to car for, the trip went so much faster than any other one!  We arrived at the hotel around dinner time, so we ate dinner at the hotel restaurant.  Christy did great again and then we headed up to our room to settle in for the night.  We now had a suite that had lots of room, and her bed was already there, as well as a fan.  They also provided us with an electric kettle (great for making instant oatmeal for her breakfasts and our lunches), and a drying wrack for when I washed clothes by hand!
Christy and her lovingly packed Hello Kitty backpack!

Christy ate well, then I gave her a bath and cut her bangs - they hung down below her eyes!  She love the bath though, and for that I was thankful.  Some orphans have never had a bath and are terrified of it when they are adopted.

I prepared her for bed, wrapped her up in a blanket and gave her  bottle of formula which she took quite well (her suck/swallow is messed up, but I thickened the formula and it went better than expected).  Then I rocked her for a while and she fell asleep in my arms.



We were so blessed.  Everything about our day went amazingly well. Christy was ours forever and she was such a good little girl!  We all went to sleep and slept as good as can be expected.  Christy slept through the night like an angel!